«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis

Congress programme


Wednesday September 8th

08:00 - 09:00
Registration
OPENING CEREMONY
09:00 - 09:05
Welcome to delegates
09:30 - 10:00
The language of PPC

Speaker: Joanne Wolfe

10:00 - 10:30
COFFEE BREAK AND POSTER VIEWING
PLENARY SESSIONS
10:30 - 11:00
Empowering parents in Palliative care

A Personal Story 
Sharon Thompson

Session Theme: The core/language of PPC

ChairRoss Drake

11:00 - 11:30
Global paediatric care

Speaker: Julia Downing

11:30 - 12:00
What could sustainable paediatric palliative care mean?

Speaker: Marie Friedel

Session Theme: Perinatal Palliative Care
12:00 - 12:30
Is There Such a Thing as a "Lethal" Childhood Condition? The Case for Trisomies

Speaker: Joanne Wolf

12:30 - 13:30
LUNCH
13:30 - 14:00
Advance care planning, neonatal and antenatal palliative care

Speaker: Finella Craig

14:00 - 14:30
Perinatal Loss is Never Over, it’s a Wound that Never Heals
14:30 - 15:00
Development and training for healthcare professionals in neonatal palliative care

Speaker: Alex Mancini

15:00 - 15:30
COFFEE BREAK AND POSTER VIEWING
Session Theme: Research in PPC

ChairSue F Kerry

15:30 - 16:00
Children with LLC; what do the data tell us?

Speaker: Lorna Fraser

16:00 - 16:30
Why should we and how can we explore and measure children's quality of life in palliative care?

Speaker: Marie Friedel

16:30 - 17:00
Children: too vulnerable for research, or too important not to ?

Speaker: Richard Hain

Session Theme: Development and policy
17:00 - 17:30
The Development of Regenbogenland in the last 15 years
17:30 - 18:00
Developing PPC in New Zeland

Speaker: Ross Drake

18:00 - 18:30
Together for Short Lives: the experience of a national children’s palliative care organisation in the UK

Speaker: Lizzie Chambers

19:00 - 21:00
GET TOGETHER AND PROFESSIONAL NETWORKING

Thursday September 9th

08:00 - 09:00
Registration and coffee
09:00 - 09:05
Welcome
PLENARY SESSIONS
Session Theme: Pain and symptom management
09:05 - 09:35
WHO says ?  Guidelines and pain management

Speaker: Richard Hain

09:35 - 10:05
Pain and Agitation in Children who cannot communicate

Speaker: Ross Drake

10:05 - 10:35
Managing respiratory symptoms

Speaker: Finella Craig

10:35 - 11:00
COFFEE BREAK AND POSTER VIEWING
11:00 - 11:30
Pain in Cerebral Palsy

Speaker: Ross Drake

11:30 - 12:00
The role of nursing as part of an interdisciplinary pain management team 
Session Theme: Siblings and family

Chair: Julie Ling

12:00 - 12:30
Gaining a child`s trust
12:30 - 13:00
Life for brothers and sisters: coping and adjustment

Speaker: Jan Aldridge

13:00 - 14:00
LUNCH AND POSTER VIEWING
14:00 - 14:30
The Health of mothers of children with a LLC

Speaker: Lorna Fraser

14:30 - 15:00
The concept of attending the siblings in Regenbogenland
Session Theme: Care planning and decision making
15:00 - 15:30
Challenges and decision-making in palliative care
15:30 - 16:00
Conflicts and conflict resolution in PPC

Speaker: Jan Aldridge

16:00 - 16:30
COFFEE BREAK AND POSTER VIEWING
16:30 - 17:00
What impact have the Belgian euthanasia laws had on paediatric palliative care teams?

Speaker: Marie Friedel

17:00 - 17:30
The importance of collaboration and high quality research in childrens palliative care.

Speaker: Lorna Fraser

17:30 - 18:00
The contribution of higher education in children's palliative care

Speaker: Claire Quinn

19:30
GET TOGETHER AND PROFESSIONAL NETWORKING

Friday September 10th

Session Theme: Transition

ChairJulie Ling

08:00 - 08:30
Supporting young adults with life-limiting conditions in their transition to adult services

Speaker: Lizzie Chambers

08:30 - 09:00
Transition to adult services

Speaker: Finella Craig

Session Theme: Education

ChairJulie Ling

09:00 - 09:30
Core competencies for education in paediatric palliative care

Speaker: Julia Downing

09:30 - 10:00
The role of volunteers and communities in PPC

Speaker: Ros Scott

10:00 - 10:15
COFFE BREAK AND POSTER VIEWING
Session Theme: Death and spirituality
10:15 - 10:45
Personal stories from experiences in 15 years of hospice work with children
10:45 - 11:15
Spirituality and children

Speaker: Jan Aldridge

11:15 - 11:45
Structure and Meaning: contrast between religion and spirituality

Speaker: Richard Hain

11:45 - 12:00
EAPC task force on Paediatric Palliative Care
12:00 - 12:30
CLOSING REMARKS
«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis
Ms Hagesæther has won several awards for her work, and regularly exibits both paintings and lithographies. She is behind several public art installations, and her work has been bought by Norges Bank, the National Library of Norway and Statkraft.
Logo The Norwegian Association for Childrens Palliative Care Logo EAPC This Congress is funded by the Norwegian Directorate of Health European Congress on Paediatric Palliative Care
© 2020