Logo The Norwegian Association for Childrens Palliative Care Logo EAPC
European Congress on Paediatric Palliative Care
© 2019
«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis

Congress programme


Wednesday September 2nd

07:30 - 08:30
Registration
OPENING CEREMONY
08:30 - 08:40
Welcome to delegates
08:40 - 09:00
Welcome
09:00 - 09:30
Empowering parents in Palliative care
09:30 - 09:45
COFFE BREAK AND POSTER VISIT
PLENARY SESSIONS
Session Theme: The core/language of PPC

ChairRoss Drake

09:45 - 10:15
Who

Speaker: Julia Downing

10:15 - 10:45
The language of PPC

Speaker: Joanne Wolf

10:45 - 11:15
What could sustainable pediatric palliative care mean?

Speaker: Marie Friedel

Session Theme: Perinatal Palliative Care
11:15 - 11:45
Trisomy

Speaker: Joanne Wolf

11:45 - 12:45
LUNCH
12:45 - 13:15
Advance care planning, neonatal and antenatal palliative care

Speaker: Finnella Craig

13:15 - 13:45
Perinatal Loss is Never Over, it’s a Wound that Never Heals
13:45 - 14:15
Experiencing Neonatal Loss
14:15 - 14:30
COFFE BREAK AND POSTER VISIT
Session Theme: Research in PPC

ChairSue F Kerry

14:30 - 15:00
Children with LLC; what do the data tell us?

Speaker: Lorna Fraser

15:00 - 15:30
Why should we and how can we explore and measure children's quality of life in palliative care?

Speaker: Marie Friedel

15:30 - 16:00
Children: too vulnerable for research, or too important not to ?

Speaker: Richard Hain

16:00 - 16:30
COFFE BREAK AND POSTER VISIT
Session Theme: Development and policy
16:30 - 17:00
Developing PPC in New Zeland

Speaker: Ross Drake

17:00 - 17:30
Together for Short Lives: the experience of a national children’s palliative care organisation in the UK

Speaker: Lizzie Chambers

17:30 - 18:00
The Development of Regenbogenland in the last 15 years
18:00 - 18:30
Developing PPC in Ireland

Speaker: Julie Ling

20:00 - 22:00
GET TOGETHER AND PROFESSIONAL NETWORKING

Thursday September 3rd

08:00 - 08:30
Registration
08:30 - 08:45
Welcome
08:45 - 09:00
COFFEE BREAK AND POSTER VISIT
PLENARY SESSIONS
Session Theme: Pain and symptom management
09:00 - 09:30
The role of nursing as part of an interdisciplinary pain management team 
09:30 - 10:00
Pain and Agitation in Non-verbal Children

Speaker: Ross Drake

10:00 - 10:30
Managing respiratory symptoms

Speaker: Finnella Craig

10:30 - 11:00
Pain in Cerebral Palsy

Speaker: Ross Drake

11:00 - 11:30
WHO says ?  Guidelines and pain management

Speaker: Richard Hain

11:30 - 12:00
COFFE BREAK AND POSTER VISIT
Session Theme: Siblings and family

Chair: Julie Ling

12:00 - 12:30
Gaining a child`s trust
12:30 - 13:00

Speaker: Jan Aldrige

13:00 - 13:30
The Health of mothers of children with a LLC

Speaker: Lorna Fraser

13:30 - 14:00
The concept of attending the siblings in Regenbogenland
14:00 - 15:00
LUNCH AND POSTER VISIT
Session Theme: Care planning and decision making
15:00 - 15:30
Challenges and decision-making in palliative care
15:30 - 16:00
Conflicts and conflict resolution in PPC

Speaker: Jan Aldrige

16:00 - 16:30
What impact have the Belgian euthanasia laws had on paediatric palliative care teams?

Speaker: Marie Friedel

16:30 - 17:00
The importance of collaboration and high quality research in childrens palliative care.

Speaker: Lorna Fraser

17:00 - 17:30
The contribution of higher education in children's palliative care

Speaker: Claire Quinn

19:30
GET TOGETHER AND PROFESSIONAL NETWORKING

Friday September 4th

Session Theme: Transition
08:00 - 08:30
Supporting young adults with life-limiting conditions in their transition to adult services

Speaker: Lizzie Chambers

08:30 - 09:00
Transition to adult services

Speaker: Finnella Craig

Session Theme: Education
09:00 - 09:30
Core competencies for education in paediatric palliative care

Speaker: Julie Ling

09:30 - 10:00
The role of volunteers and communities in PPC

Speaker: Ros Scott

10:00 - 10:15
COFFE BREAK AND POSTER VISIT
Session Theme: Death and spirituality
10:15 - 10:45
Structure and Meaning: contrast between religion and spirituality

Speaker: Richard Hain

10:45 - 11:15
Spirituality and children

Speaker: Jan Aldrige

11:15 - 11:45
Personal stories from experiences in 15 years of hospice work with children
11:45 - 12:00
EAPC task force on Paediatric Palliative Care
12:00 - 13:00
CLOSING CEREMONY
«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis
Ms Hagesæther has won several awards for her work, and regularly exibits both paintings and lithographies. She is behind several public art installations, and her work has been bought by Norges Bank, the National Library of Norway and Statkraft.
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