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European Congress on Paediatric Palliative Care
© 2019
«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis

Members of the Scientific Committee


Lorna Fraser

Lorna Fraser initially trained as a Paediatrician, graduating from the University of Aberdeen’s medical school in 1999 and becoming a member of the Royal College of Paediatrics and Child Health in 2002. I then changed career path and completed a PhD from the School of Geography at the University of Leeds in 2012.

She works as a Senior Lecturer in Paediatric Epidemiology at the University of York and she is also the director of the Martin House Research Centre.  Here main topic area is chronic and life-limiting conditions in childhood and the use of routinely collected data in research. Currently she holds research grants from the major funders in the UK including the NIHR and MRC as well as charity grants. She is also a member of the Health Research Authorities Confidentiality Advice Group

Bård Fossli Jensen

Bård Fossli Jensen believes in the partnership between the doctor and the patient. By gentle guiding when a child is ill, it is fascinating to see how both the child and his parents find coping strategies they often didn’t even know they had.

He is a medical doctor, specialist in pediatric medicine, has a Ph.D. in medical communication and is trained in hypnotherapy. He teaches medical students, doctors and other health care professionals how to combine modern medicine with the latest research in the field of communication. His talk will walk you through what you and your child should expect from your doctor the very first time you meet.

Astrid Rønsen

NTNU (Nurse and Associate Professor at Norwegian University of Science and Technology Department of Health Sciences)

Finella Craig

Finella Craig has been a Consultant in Paediatric Palliative Medicine at Great Ormond Street Hospital (GOSH) since 2002.  She has worked as a paediatrician since 1989. Dr Craig is a specialist in paediatric palliative medicine.

Dr Craig is a member of the following local, national and international groups:

  • The European Association of Palliative Care Paediatric Taskforce
  • Together for Short Lives, Practice and Service Development Council
  • Together for Short Lives Clinical Ethics group
  • North Central London Children’s Palliative Care Network
  • London Children’s Palliative Care Network

She is on the management group of The Child Death Helpline, where she is a shift supervisor, and is a Medical Practice Facilitator with Child Bereavement UK.

Her palliative care training included two years with a community and hospital-based adult palliative care service as well as with the Paediatric Palliative Care team at GOSH.

Research interests

Dr Craig’s research interests are varied and have focused on developing access to palliative care services and palliative care support for children with non-malignant disease. Conference presentations, invited lectures and publications have focused on the following themes:

  • palliative care support in the intensive care unit
  • out-of-hospital extubation
  • neonatal and antenatal palliative care
  • palliative care for young adults
  • the provision of palliative care services within the school community

Dr Craig has contributed to several national and international service and policy documents

Julia Downing

Professor Downing is an experienced palliative care nurse, educationalist and researcher. She is the Chief Executive of the  International Children’s Palliative Care Network (ICPCN) and a Professor in Palliative Care at Makerere University, Uganda. She has extensive experience in research, presenting at conferences and writing for publication, and is on the editorial board of ecancer, APM and the International Journal of Palliative Nursing (IJPN). She has been working within palliative care for 27 years, with nineteen of those working internationally in Uganda, Africa, Eastern Europe and globally developing palliative care services for adults and children. She is passionate about children’s palliative care and also the role of the nurse and seeks to promote both in all that she does.

Lizzie Chambers

Lizzie is currently Director of Programmes at Together for Short Lives.  Prior to this she was Chief Executive of ACT for 10 years.  She has authored a number of children’s palliative care documents, including the Guide to the Development of Children’s Palliative Care and the Care Pathway series. Lizzie has also been involved in the global development of children’s palliative care as a Board member of the International Children’s Palliative Care Network from its inception until 2016.   She is currently Co-chair of the Paediatric Taskforce of the European Association of Palliative Care.

«Children are not a distraction from more important work. They are the most important work»
C.S.Lewis
Ms Hagesæther has won several awards for her work, and regularly exibits both paintings and lithographies. She is behind several public art installations, and her work has been bought by Norges Bank, the National Library of Norway and Statkraft.
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